Saturday, April 20, 2013

KAP Profile - The Kellys (Leadership)

It's time to get in the WABAC machine and return to the beginning.  To know more about Kelly Autism Program means it's time to get to know The Kellys.  Having spent some time with John and Linda, I'm almost certain that they would prefer we focus on others and that they would tell you that the start and growth of this program was not only something that they wanted to do and felt compelled to do, it was something that they simply couldn't not do.  And when we stop to consider the amount of time, money, effort, compassion, and love that they've put into the program that bears their name, well, we simply couldn't not put the spotlight on them for a moment, right?

Therefore, it is with great delight that I get to share with you a bit about The Kellys, a couple that has done more for and given more to the program than I can adequately present and than most people will ever know....and they continue to do so.  They are an extremely active, available, and caring force behind KAP of unwavering commitment and grand vision.

Q:  Will you share some things about you with us?
John:  I was born in Toronto, Ontario...attended The University of Toronto...thought I would be a teacher but got into business...joined DESA Industries of Canada in 1972...transferred to the head office in Bowling Green, Kentucky in 1983 as VP of Sales/Marketing...ultimately retired in 2000 as COO.  In 2003, my partner from DESA and I joined Pan Oston, Ltd., a store fixture company majority owned by Houchens Industries, in a turn-around effort...after leading the company back to stability and profitability I retired again in 2011.

Linda grew up in Wisconsin and we met through business...her company sold construction equipment to DESA Canada for the Canadian market.  We married in 1981.  We have two children, Victoria (age 26) and Michael (age 22).

Currently, I am on the CEC Board of Directors, member of the College of Education and Behavioral Sciences Board of Advisors, member of the Board of Advisors for the College of Health and Human Services, member of the WKU President's Board of Advisors, and member of the recently completed WKU Capital Campaign....and former board member of Kids on the Block and New Beginnings Therapeutic Riding.

Q:  What led to your involvement in starting and growing KAP?  And in what ways has WKU and the Bowling Green community supported KAP and how important has that been for the success of the program?
John:  We watched Victoria attending middle and high school and not having teachers with comprehensive training in autism.  We were concerned that we were not maximizing her capabilities - and worried about others in the same condition who have the capability to do more and were being contained and restrained.  We worked with Dr. Frank Kersting - WKU Speech faculty and who also provided private services to our family - and Mary Lloyd Moore, Sam Evans, and others at WKU to provide a working "umbrella" to create the program and include groups and individuals from school systems and the community in the program.  We have had excellent cooperation and participation from the community.

Q:  Are there plans to extend this program beyond WKU?
John:  We have already expanded KAP into Owensboro, at Wendell Foster (MADKAP note: a campus for developmental disabilities formed in 1947), providing many of the services that we provide in Bowling Green and we believe that there is an opportunity to take our "applied" program to other communities around the country.

Q:  What are the main ways that parents/guardians of autistic children become aware of KAP?
John:  Most are hearing of us through word of mouth, referrals, and the web site.  Some are getting involved - particularly the college program - through seminars and other media/presentations by KAP staff.

Q:  What are the biggest challenges to continue growing/enhancing the program and fulfilling the mission?
John:  The biggest challenge is to support the high level of services that we provide  while, at the same time, enabling productive growth of the programs.  We need resources to train staff while improving and expanding facilities in order to provide our individuals and families with the best in services and practices.

Q:  What things would you most like supporters of KAP to know about the program that might not be well-publicized?
John:  That we have created a support infrastructure that will be with KAP members throughout their entire lives.  KAP does not stop at 16, or 21, or after graduating from college, or when getting a job, or living on their own...support, at various levels, is likely to be needed for their entire lives.

Q:  What do you like to do when you're not working and being involved with KAP and what are some of your favorite things?
John:  I try to work my personal life in thirds....try to look at my life as made up of Family, Philanthropy, and Business interests.  Vacations with the family are one of my favorite things.  And I am a poor golfer but love the "bar cart".

Q:  What does additional financial support and scholarship funding enable for KAP?
John:  Additional funding is required for KAP to maintain its current high level of performance and support, and to provide for growth and expansion of our programs.  With the incidence of autism now almost 1 in 50 children, we have a national epidemic that is not getting the financial support and recognition that is necessary.  We need more effectively-trained teachers, speech therapists, and counselors...and to make these services more available to communities around the country.


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Tuesday, April 16, 2013

Thank You! - Another Fund-Raising Hurdle Cleared

Very pleased to report that the 2nd hurdle has been cleared and, therefore, I'm putting another $500 check in the mail for the MADKAP initiative.  I truly can't thank you all enough for the support.  Including the $500 mentioned we are now over the $6000 mark, and I'm aware of several very generous donations initiated during the last few days that have yet to officially post, so I suspect we are rapidly approaching the next hurdle as well.  Thank you!  Please share the word - via Facebook, Google+, MySpace (does that still exist?), LinkedIN, Twitter, Snapchat, Sharpie message on your forehead, any social media that works for you - with others who can support the MADKAP initiative and might also benefit from knowing about Kelly Autism Program.  And donors don't even have to create a new account to contribute...if someone already has a PayPal account, it's that easy (see "Donate Now" link).  Thank you again...it means a lot to everyone involved with the program (and even to some future KAP students who have yet to join the program).
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Sunday, April 14, 2013

KAP Profile - Kathryn (Student)

Greetings again MADKAP supporters, and welcome to our second student profile...this one featuring Kathryn.  Kathryn stands out in the KAP college program for a number of reasons, including her west coast affiliation and her gender...most estimates place the male-female ratio for autism at 4:1.

A quick summary from the program:  "Kathryn has a great personality and is blossoming on WKU's campus.  She is also an advocate for autism and will even be presenting at the national autism conference next fall!  We are excited to watch Kathryn grow and look forward to her bright future."

Let's hear more from Kathryn in her words....(and I don't know about you, but as far as cookies go, date meringue sounds delightful to me)

Q:  What year are you at WKU and what is your major?
Kathryn:  This is my first year at WKU, but I am a sophomore.  My major is Sports Management with a minor in Communication Studies.

Q:  Where are you from?
Kathryn:  I am from Southern California, halfway between Los Angeles and San Diego...a very long way from home!

Q:  Why did you select WKU?
Kathryn:  I chose to attend WKU because of the Kelly Autism Program.  There are only a handful of colleges and universities in the United States with autism programs, and none are on the west coast, so coming to Kentucky was an obvious choice.

Q:  What are your biggest challenges with college?
Kathryn:  I think the biggest challenge is that it's extremely difficult for most people to identify that I have a disability.  If I don't reach out to my professors and tell them that I am mildly autistic, then this is misinterpreted as "Kathryn doesn't live up to her potential".

Q:  What does KAP provide for you?
Kathryn:  KAP has provided the extra support that I have always needed in school.  Every day when I go to KAP, there's always someone there to help me study or to decipher a concept I didn't understand from a lecture.  KAP has provided me with opportunities to speak out on self-advocacy, and that's a blessing because I have a lot to say since I was only diagnosed at eighteen (18).  I've met many friends from KAP too, so it's comforting to have this built-in community and pass familiar faces on campus.

Q:  What do you want to do with your education after you graduate from WKU?
Kathryn:  I took a semester off at one point, and that made me realize how much I love school and to learn.  I wouldn't be surprised if I went on to pursue another degree after WKU.  I want to work towards a career in Public Relations, so whatever it takes for me to accomplish that goal!

Q:  What are your hobbies and favorite things to do?
Kathryn:  I love to bake and experiment with old family recipes; date meringue cookies are the latest success!  When I'm home on the west coast, I take advantage of the beautiful weather and load my road bike and head to the Hollywood Hills.  I also keep up on sports, so going to hockey, baseball, and basketball games is one of my favorite things to do.

Q:  What do you want potential supporters of KAP to know?
Kathryn:  I'm new to WKU and the Kelly Autism Program this semester, but I've already experienced how helpful it is to have this network of people who strive to be there for each student.  I feel more confident when I study on my own now, because KAP has provide great techniques in order for me to be successful.  I want potential supporters to know that being in the Kelly Autism Program still allows me to have the typical college experience but provides opportunities I wouldn't have otherwise.



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April = Autism Awareness Month

Quick note just to remind everyone that it is Autism Awareness Month.

Your support of the MADKAP initiative to generate scholarship funds for KAP has been fantastic.  Incredibly generous gifts have been given - some so generous and unexpected from some of you that it's been both stunningly humbling and wholly energizing.  Thank you isn't sufficient, but thank you.  Let's keep it going and also share the word with others....we can undoubtedly hit the $25K mark and see to it that WKU matches our efforts.

Also, in terms of literally taking the KAP name to the streets, we are now in the final fortnight of training for the first 1/2 marathon (Country Music in Nashville - 4/27).  The long weekend runs have been completed, the hard tempo work contributed, and a couple of pesky minor injuries linger.  It's time for some race miles cloaked in the KAP colors.

A few quick points re: autism given the aforementioned month:

--autism now affects one (1) out of 88 children, a figure that increases in concentration upon seemingly every update

--there are no medical tests for autism; diagnosis is solely behavioral.  This accounts for the extreme age range of initial diagnoses

--autism affects what most of us know to be the normal development of the brain and can affect not only behavior but communication skills, pragmatic language use, and social interactions

--autism is a spectrum disorder; there is a wide range of difference in how it manifests and I'll speak to this more in a future article


Thank you again everyone.  We are collectively making a difference.
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